The research data from the Survey on Hidden Mobility Disabilities is the first of its kind to document the lived experience of persons with hidden mobility disabilities (HMD). Driven in part by requirements to monitor the UN Convention on the Rights of Persons with Disabilities, a lot of focus has been placed on developing a standard approach to gathering data on disabilities. However, that focus globally has not included the issue of statistics on hidden mobility disabilities.

From a disabilities researcher when asked about HMD: “I never thought about it.”

While questions are asked about walkable distance, the effort of stairs, and time standing, the questions are based on inappropriate assumptions regarding what relevant baseline measures would be. Definitional issues are explored on the Definitions page, and the specific methodological issues are discussed on the Methodology page.

The attached Summary of Major Mobility Research Methodologies (pdf) reviews methodologies currently in use from the perspective of the data needed. It focuses on the methodologies of:

  • The World Health Organization Model Disability Survey
  • The World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0)
  • The UN Statistical Commission’s Washington Group on Disability Statistics
  • The U.S. Census Bureau
  • Statistics Canada